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We need your help!

There are many ways to get involved and contribute to the Malan Syndrome Foundation, all of which are valuable and help us further our cause! 

FUNDRAISe

Help fundraise to support the Foundation's efforts to develop informational resources and advance research on Malan syndrome. 

ADVOCATE

Become an advocate! Help us raise awareness for Malan syndrome in your own community. Click below for some suggestions from NORD Rare Action Network on hosting events.

SHARE YOUR STORY

We all learn from each other! Help us increase awareness and grow our community by sharing your story. 

Contact us: info@malansyndrome.org

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Support us and help raise awareness for Malan syndrome by purchasing t-shirts and other merchandise.

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DISCLAIMER

The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

CONTACT US

email: info@malansyndrome.org

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