If you would like to plan an event to raise awareness or fundraise for Malan syndrome in your local community, please let us know (info@malansyndrome.org). We will post your event here!
Malan Syndrome Family Conference
May 21- May 23, 2021
Clark, NJ
Due to the COVID-19 pandemic, the Malan Syndrome Family and Scientific Engagement Conference has been rescheduled for May 2021.
We hope you and your family stay safe and healthy.