If you would like to plan an event to raise awareness or fundraise for Malan syndrome in your local community, please let us know (info@malansyndrome.org). We will post your event here! 

Malan Syndrome Family Conference

May 21- May 23, 2021

Clark, NJ

Due to the COVID-19 pandemic, the Malan Syndrome Family and Scientific Engagement Conference has been rescheduled for May 2021.

We hope you and your family stay safe and healthy.


The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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