If you would like to plan an event to raise awareness or fundraise for Malan syndrome in your local community, please let us know (info@malansyndrome.org). We will post your event here! 


Malan Syndrome Family Conference

Clark, NJ

Due to the COVID-19 pandemic, the Malan Syndrome Family and Scientific Engagement Conference has been canceled for 2021.

We hope you and your family stay safe and healthy.

Tate and Zak Boston 2019.jpg