If you would like to plan an event to raise awareness or fundraise for Malan syndrome in your local community, please let us know (info@malansyndrome.org). We will post your event here!
Malan Syndrome Family Conference
May 29- May 31, 2020
Clark, NJ
Registration is now open.
To learn more about the conference and to register, click here.
We look forward to seeing you in May!
Sponsorship Information Packet Now Available
If you or your company would like to be a sponsor for the Malan Syndrome Family and Scientific Engagement Conference, click here for more information.