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The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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If you would like to plan an event to raise awareness or fundraise for Malan syndrome in your local community, please let us know (info@malansyndrome.org). We will post your event here! 

Malan Syndrome Family Conference

May 29- May 31, 2020

Clark, NJ

Registration is now open.

To learn more about the conference and to register, click here.

We look forward to seeing you in May!

Sponsorship   Information   Packet Now Available

If you or your company would like to be a sponsor for the Malan Syndrome Family and Scientific Engagement Conference, click here for more information.