If you would like to plan an event to raise awareness or fundraise for Malan syndrome in your local community, please let us know (info@malansyndrome.org). We will post your event here! 

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Malan Syndrome Family Conference

Clark, NJ

Due to the COVID-19 pandemic, the Malan Syndrome Family and Scientific Engagement Conference has been canceled for 2021.

We hope you and your family stay safe and healthy.

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