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The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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Keep your face to the sunshine and you cannot see the shadow, it's what sunflowers do.     

                                                 -Helen Keller

                                                 

Family Resources

CLOSED FAMILY SUPPORT FACEBOOK GROUP

The Malan Syndrome Family Support Group (closed Facebook group) is a site where family members of individuals with Malan syndrome communicate about medical, developmental and behavioral issues. Many helpful resources are shared, as well as special moments that have so much meaning to our families. Parents of individuals with Malan syndrome are encouraged to request access to the group by clicking here.

MALAN SYNDROME FOUNDATION PAMPHLET- PRINTABLE

Click here to print trifold pamphlet.

HELPFUL ONLINE RESOURCES