Keep your face to the sunshine and you cannot see the shadow, it's what sunflowers do.
CLOSED FAMILY SUPPORT FACEBOOK GROUP
The Malan Syndrome Family Support Group (closed Facebook group) is a site where family members of individuals with Malan syndrome communicate about medical, developmental and behavioral issues. Many helpful resources are shared, as well as special moments that have so much meaning to our families. Parents of individuals with Malan syndrome are encouraged to request access to the group by clicking here.
MALAN SYNDROME FOUNDATION PAMPHLET- PRINTABLE
Click here to print trifold pamphlet.