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Finishing Line

Join us for our second annual Malan Syndrome Run, Walk and Roll!

August 19- September 3, 2022

You can help us raise awareness for Malan syndrome anywhere in the world. This is a virtual event. Form your own team, register individually or join a team. Let's make this the biggest event to date! 

All donations will go directly to research that will improve the understanding of Malan syndrome and accelerate treatments for our children. We are currently raising funds to support the following research-related initiatives:

  • Biorepository

  • Development and characterization of disease models

  • Drug repurposing screen