Our second annual Malan Syndrome Run, Walk and Roll was held August 19- September 3, 2022.

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This was a virtual event and Malan families and their communities participated from all over the world! 

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This year's event raised over $50,000 USD for Malan syndrome research. The Malan Syndrome Foundation funds research studies that will improve the understanding of Malan syndrome and accelerate treatments for those affected. Currently, we are raising funds to support the following research-related initiatives:

• Biorepository

• Development and characterization of disease models

• ASO therapy

• Drug repurposing screen