If your child has a diagnosis of Malan syndrome, join our contact registry.
Families in our contact registry will receive information (by email) on the following:
advancements in care and treatment
opportunities to participate in research
connections with other families in your local area or country
*If you are a family member (grandparent, sibling, aunt, uncle, etc) of an individual with Malan syndrome, please do not submit this form. Instead, scroll down to the bottom of this page and subscribe to our website for general mailings.