Family Connect

The Malan Syndrome Foundation is a nonprofit organization working  to establish a strong community of support for families affected by Malan syndrome.

This form is to register your family with the Malan Syndrome Foundation and only intended for the parents (or primary caregivers) of individuals with Malan syndrome (NFIX variant). To learn more about how your data is protected, please refer to our Privacy Policy.

By submitting my personal information, I understand and agree with the privacy policy. To opt-out of Family Connect, please contact us at info@malansyndrome.org.

DISCLAIMER

The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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