Family Connect is a contact registry. It will be used to inform individuals with Malan syndrome or their parents/guardians about:
advancements in care and treatment
opportunities to participate in research
other Malan families that live in your area
*If you are a family member (grandparent, sibling, aunt, uncle, etc) of an individual with Malan syndrome, please do not submit this form. Instead, scroll down to the bottom of this page and subscribe to our website for general mailings.