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What is Malan Syndrome?
Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene and is characterized by overgrowth, intellectual disability, vision and/or hearing impairment, skeletal anomalies, epilepsy and anxiety.
Learn more about the Malan syndrome support group and online resources for speech, vision/hearing impairment and special needs parenting.
*NEW--Printable Professional Guide for Malan Syndrome
To help us grow our community and this organization, get involved by joining the patient registry, making a donation, fundraising, volunteering your time, shopping for Malan and MORE.