​Here are some ideas:

  • Dinner party for family and friends- have a theme and get creative!

  • Plan a community walk/run 

  • Golf tournament

  • Sports tournament (bowling, basketball, soccer)

  • Fitness event (zumba, yoga, flywheel)

  • Bake sale (also online bake sale)

  • Paint Night- paint and sip wine all while raising money for our nonprofit

  • Sell sunflowers- partner with your local florist to sell sunflowers or other seasonal flowers

  • K-12 school events that support charitable nonprofits

  • Set up your own Facebook Fundraiser, no fees and 100% of the donation goes to the Malan Syndrome Foundation!

*Malan Syndrome Foundation is a 501(c)(3) nonprofit organization. EIN # 83-3063901

Please email us at with any ideas you have for fundraising or Malan syndrome events you are planning in your local communities. We are happy to help you!

Help us reach our 2019 year-end fundraising goal of $20,000. 

These funds will help pay for the first Malan Family Conference taking place next year, bringing families and researchers from around the world together for education, community and collaboration.

The Malan Syndrome Foundation is determined to enhance the quality of life for those affected by Malan syndrome by creating a strategic plan focused on improved patient care and identifying meaningful treatments.


The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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