
SAVE THE DATE!
Malan Syndrome Family and Scientific Engagement Conference
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Children's Hospital of Philadelphia
Philadelphia, PA
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July 23-26, 2026
Conference Registration Opens November 15, 2025
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PROGRAM AT A GLANCE
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Thursday, July 23: Research Roundtable (by invite only)
Friday, July 24: AM, Research Roundtable (by invite only); PM, Community Welcome Dinner
Saturday, July 25: Clinical and Research Sessions
Sunday, July 26: Family Sessions; Conference concludes at 12PM ET
Monday - Wednesday, July 27 -July 29: Comprehensive Genetic Appointments (optional)
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A preliminary agenda will be available in February 2026.
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GET STARTED
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Click here for the registration checklist
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Click here for "Frequently Asked Questions" about the 2026 conference
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Early Bird Registration Costs
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Adult (18+): $100
Teen (13-17): $75
Children (4-12): $50
Children (0-3): Free
Malan Sunflower: Free
*NEW* Virtual Admission: $50 per household
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Hotel Information
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Sheraton Philadelphia University City
3549 Chestnut St
Philadelphia, PA 19104
$189/night + taxes
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