
SAVE THE DATE!
Malan Syndrome Family and Scientific Engagement Conference
Children's Hospital of Philadelphia
Philadelphia, PA
July 23-26, 2026
Conference Registration Opens November 15, 2025
PROGRAM AT A GLANCE
Thursday, July 23: Research Roundtable (by invite only)
Friday, July 24: AM, Research Roundtable (by invite only); PM, Community Welcome Dinner
Saturday, July 25: Clinical and Research Sessions
Sunday, July 26: Family Sessions; Conference concludes at 12PM ET
Monday - Wednesday, July 27 -July 29: Comprehensive Genetic Appointments (optional)
A preliminary agenda will be available in February 2026.
GET STARTED
Click here for the registration checklist
Click here for "Frequently Asked Questions" about the 2026 conference
Early Bird Registration Costs
Adult (18+): $100
Teen (13-17): $75
Children (4-12): $50
Children (0-3): Free
Malan Sunflower: Free
*NEW* Virtual Admission: $50 per household
Hotel Information
Sheraton Philadelphia University City
3549 Chestnut St
Philadelphia, PA 19104
$189/night + taxes
