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We need your help!

There are many ways to get involved and contribute to the Malan Syndrome Foundation, all of which are valuable and help us further our cause! 


Help fundraise to support the Foundation's efforts to develop informational resources and advance research on Malan syndrome. 


Become an advocate! Help us raise awareness for Malan syndrome in your own community. Click below for some suggestions from NORD Rare Action Network on hosting events.


We all learn from each other! Help us increase awareness and grow our community by sharing your story. 

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Support us and help raise awareness for Malan syndrome by purchasing t-shirts and other merchandise.

spread the word and Follow us on social media

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